Friday, January 6, 2012

Hi, my name is Mac and I'm an enabler.


I buy Rubber Duckies by the dozen, Sippy Cups by the arm full. I let Alex stim whenever, where ever, for however long he wants. I don't only allow him to stim, I find new and improved ways he can do it. Sometimes, I even have help finding new and improved ways to stim- Thanks, Ancora Impartial, for being my partner in crime on this one. I don't make him dress himself- but he does pull his own pants up. I don't force him to use his spoon or his words. I feed him or let him eat with his fingers and give him whatever he asks for verbally because it was important enough for him to use his words. I let him turn our bathroom into an ocean at bath time. I let him jump and throw balls in the house. I do things I know he likes. I let him hide in his room whenever he wants, I don't force him to interact with people and I baby him like crazy. If he wants a hug, he gets a hug. He wants to be held- I hold him. He wants to be carried- I carry him as far as I can. I build my world around him instead of making him adjust to mine. I don't only enable his autistic, dependent, babyish ways... I love every minute of it.
video


He drinks out of a regular cup when he wants to, he uses his spoon when he feels like it. He uses them more on his own than when he's forced to use them. He can fully undress himself and doesn't complain about pulling his pants up or his shirt down. He knows if something is important enough to use his words for he will get it without question. When he was 4, the first group of words he said to me were when I was holding him in the doctor's waiting room. He said "want one?" I was in shock! I said "Want one?! Want one what?" "baby". Ok, then. We went and got a baby and I bought every different kind of baby there was until I found out he wanted a black baby like the one at school. Ok. I got him the baby he wanted and he took it everywhere with him, I dared his dad to say a word. Daddy said- "He asked for it? Let him have it." After that, every birthday, every Christmas he got babies until his attention turned to rubber ducks. Since I don't force him to interact with people there's not a huge amount of pressure on him so he feels free to acknowledge who he wants and ignore who he wants, so far this has resulted in him being a social butterfly about 75% of the time. and because I baby him with the hugs and holding and carrying he knows when something's wrong "Mommy's here." (Yes, I know that is usually reserved for the other mom but on those special occasions when he cries and says "awww, I know. Mommy's here," it's me he's talking about.)

The first words ever said to me that knocked the air right out of my chest were the words "Have you considered autism?" The second words that not only took my breath but knocked me to my knees were "You have to consider the fact that he may never go beyond where he's at." I went through all 5 stages of grief and later went beyond acceptance to embracing it. Do you know how many mothers have sat there cuddling their baby and said these exact words to them..."I wish you could stay like this forever"? Wish granted. What do I have to complain about? It's such a burden to have your almost 10 year old son not find you embarrassing? not want to fight you on what's fair? It's such a pain to have your teenage son want to give you loves? that doesn't think you are sticking your nose where it doesn't belong? It's a hassle to have a 20ish year old son who still thinks you have a clue about life? or think that you are just as important as he is? I have nothing to complain about.

Why do I need to push him to be something he's not when I can use the time to appreciate who he is instead? He will use his words (and does) when he's ready. He will use his spoon all the time when he's comfortable holding it. He will learn at his own pace the things that he needs to learn. I don't care if he's ever potty trained. Yes, we work on it but it wouldn't be the first adult diaper I've ever changed. So what if he eats with his fingers? Who is that bothering? Not me. Not his brothers. So what if I have to buy sippy cups every now and then? or the most expensive toy elmo ever mass produced because it was important enough to name? Who is it hurting? Not him. He's happy just as he is. Do I want him to make progress? More than anything, I would love to see that. Do all of my hopes ride on that? No. He gets the ABA, the OT, ST, APE, music therapy. Any therapy available he gets- during school. My other boys don't do homework 24/7. They have time to relax. They have their little things I do for them to show them I love them for who they are and I accept them no matter their ability level. Why should he be any different? He's not expecting me to change who I am to meet his standards, he loves me anyway. Doesn't he deserve the same?

27 comments:

  1. We live this way too! Home is a safe place for autism - if he wants to listen to the same 3 seconds of TV 1000 times, I pretty much let him. If the only thing he asks for is "chocolate ice cream", guess what he gets?

    Therapies are all undertaken outside of our house - I wouldn't even consider making him do stuff after school - he works at least 2 x as hard as all the NT kids in his grade ...

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  2. Exactly! Thank you, Britkim :)

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  3. Beautiful. I wish I could say I'm at that same level of acceptance with my son (language delay, SID), but I'm not. I'm getting better, though. Not allowing him to progress at his own rate has been frustrating for me, which in turn, frustrates him. When I don't push so much, he learns more easily and feels more comfortable with "failing". I also enjoy the hugs and cuddles!

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  4. Without even realizing it this is kinda exactly the way we are...but i always feel guilty about it...

    Nice to read someone else who's fine with it!!

    Thanks!!!

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  5. Iam an enabler too...If he wants the TV on all the night so he can sleep peacefully then let that be...if he wants to buy CDs that get thrown in rubbish in a few days,Iam not stopping him..I would do anything to make him happy ,even if I may be "spoiling" him

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  6. My son is 13 and I'm still the same way. People try to make me feel guilty for babying him so much, but they don't have to live my life. I, just like any other parent, want my child to be happy, and if buying him Barney DVDs make him happy I'm going to do it no matter how old he gets.

    Tina

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    1. my 14yo aspie still likes stuffed animals.......and i buy them for him!!!

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  7. Our son, Cody, is 18 years old and with severe autism. Our life has always been about making him happy!! Thank you for putting into words.

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  8. I am an ABA Therapist. I love my job. Sometimes I have wondered if I was "too soft" for not pushing issues, like using a spoon or potty training when it's so obvious it's uncomfortable or the child just isn't ready. I hug. I cuddle. I don't push verbalization if I see any sign of distress when we work on this program because I know it can be really difficult for some children.

    And I have always wondered why more people don't meet these children half way instead of expecting them to fit into the Neurotypical's world? What IS wrong with stimming when it centers or grounds these dear ones? Life in this world is confusing and causes such fear...so why take away what helps them handle it all?

    I have seen parents refuse to let a child stim or have a type of toy that helps them cope or makes them happy just because it does not seem age appropriate or it might annoy or embarrass someone. I have seen parents push WORK on kids too sick to manage. I have seen parents expect the child to meet all the milestones of their peers and never have a break from...WORK.
    I have never seen a parent express themselves like you just did. I LOVED EVERY SINGLE WORD OF IT. I APPLAUD YOU. I LOVE YOU even though I don't even know you.

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  9. I love this text !!!!! I am also like u, I try to be happy with the improvement my son gets, but I understand that's the way he is and I try to give him a break at home. I interact with him, I talk to him, but if he is more into his iPad, and he is smiling to 'angry birds' so be it. I also get criticized a lot for not demanding for progress and not making him work hard for his "success" . Thanks for expressing it so good.

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  10. Amazing! Puts into words how I feel.

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  11. The World at large needs to adpat to people who ahve Autism, not the Other Way Around.

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  12. Sounds very familiar pretty much the way we live too with our 10 year old beautiful boy with severe autism x

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  13. Love, love, love this!

    I feel blessed to have my children exactly the way they are. Does that mean I never want them to learn, grow, change? Of course not! The one constant in the world is change. And I can love every part of the journey. Even the parts I hate.

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  14. (raising both hands)
    Hi, my name is Lisa and I'm an enabler.

    Whew - man is it nice to know that I'm not alone in this :)

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  15. Enabler! My 16yo HFA son, has to think twice as hard to do half as much. Just getting through the day is a minefield! As mentioned, home is a safe place for autism...his haven to decompress, to reorganize, to just be.

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  16. Thank you for sharing this. I also am a enabler,if my 3 yr. old wants the tv on cartoons all day, he gets it, if he wants chocolate ice cream he gets that to, and hugs and kisses all the time, I know I baby him, but Iam like you, I want him to know when he's upset that I am here for him, and that everything will be OK, my husband says iam spoiling him. But I just want him to know with all that he's going through, he can atleast be at peace when he's in my arms. I also dont force him to use spoons, he uses his fingers or I feed him, and he can't drink from a regular cup, And I don't think you should force them to show affection (give a hug) to someone if he dont want to. I to just want him to be happy, glad I am not alone in this.

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  17. thanks for saying what i've been too afraid or ashamed to say, somehow i thought it made me look bad, but damn, when you say it it looks great, thanks for taking me to where i need to be! proud of the job i do with ashley!

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  18. i don't disagree with you but I can't relate. I don't see it this way. If I knew what made my son happy I would give it to him. I don't think stimming by raging at his hands or running back and forth and back and forth is making him happy. He cries sometimes for no discernible reason at least not discernible to us and that frustrates him...How can I help him or meet his needs if I don't understand him....I think my job is to do all I can to facilitate his ability to communicate so that his wants and needs can be met..... I was originally of the mindset that afterschool therapy would be too much ...that he needed downtime but his downtime is not happy time ..it is stim time and while I do believe that children should be allowed to stim at times, ....I do not think it is helpful for my child to do it for hours.....so, for the time being, we will do what we can to engage him for as often as we can and to try and teach him to communicate as best he can so that his voice may be heard and that he can tell us in some way what makes him happy..... I hate this goddamn disease and I can't see one positive thing about it. I love my son and to me this autism is some awful parasite that is eating him alive---I'm glad you experience it differently and I wish you well.

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  19. Thank you for sharing that. I work with young adults with autism, and what you shared really touched me.

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  20. Ah! I see why now. Beautiful and sharing!

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  21. Beautiful :-) we too buy rubber duckies by the dozen, they rock.

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  22. Perfect, its such a breath of fresh air to read a positive, uplifting blog like yours... I can relate One Hundred Percent..Thanks for sharing, I am now a FAN.

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